2023 Family Heart Foundation Research Highlights

When it comes to the diagnosis and treatment of familial hypercholesterolemia (FH) and elevated lipoprotein(a), or Lp(a), there are still so many unanswered questions.

What we have learned from our research is impacting peoples’ lives right now. We are using artificial intelligence to address the under-diagnosis of FH. Big data is telling us the consequences of high Lp(a), and our registry collects health data over time to share and educate.

2023 was a big year for research – here are some of the highlights:

Launching FIND Lp(a)

In 2015, we launched the FIND FH® program. Using a machine learning algorithm, we analyze de-identified Electronic Health Records (EHR) data to help find individuals with potential FH. Today, more than 2,500 people across 5 health systems have been identified or “flagged” as probably FH. Approximately 80% of those individuals were eligible for a clinical follow up. Over 200 patients have been newly diagnosed with FH with the help of the FIND FH program.

In 2023, the Family Heart Foundation launched the FIND Lp(a)®. Building on the success of the FIND FH model, the FIND Lp(a) model will be created and trained using an updated Family Heart Database. The model output will allow providers to focus on undiagnosed individuals who need further evaluation to determine if they have elevated Lp(a).


Publishing and Presenting New Research

This year, we presented important research on the poor state of LDL management in America at several scientific meetings: the American College of Cardiology Scientific Sessions, the Academy of Managed Care Pharmacy meeting, and the National Lipid Association meeting.

This analysis from the Family Heart DatabaseTM examines the state of LDL cholesterol management in 38 million Americans at high risk for cardiovascular disease. Ultimately, this research highlights a glaring gap in American healthcare. Read more to get the full picture.


Prioritizing LDL Policy Paper

During the 2023 Family Heart Global Summit, we secured time for a congressional briefing on Capitol Hill. In conjunction with this meeting, we released new policy paper on “Prioritizing LDL-Cholesterol Control” which contains important recommendations for policy makers, patients, healthcare practitioners, and payers. Flip through the white paper here.


Leave a Reply