Familial Hypercholesterolemia story

Personal Story from Advocate for Awareness of living with Homozygous Familial Hypercholesterolemia

Jessica’s Story

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For Seven Years I Thought I had a Perfectly Healthy Child

When Jessica’s father died of a heart attack at the young age of 54, she didn’t know the reason could be genetic. “He was a stubborn man who never went to the doctor,” explains Jessica. But when the doctors told her that her total cholesterol … Read More →


Betty Jo Familial Hypercholesterolemia (FH) Story

Fern - Living with Familial Hypercholesterolemia (FH)

Cholesterol is Key - Cholesterol Education Month

September 24 is FH Awareness Day

Tom's Story - Living with HoFH

7 Travel Tips: Planning a Vacation with FH or elevated Lp(a)

Nurses Blog

When You Have Both: Managing FH and High Lp(a)

When You Have Both: Managing FH and High Lp(a)

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March 24th was the first ever Lipoprotein(a) Awareness Day, and my conversations about it went something like this:
 
Me: Did you know today is Lp(a) Awareness Day?
Friend: What’s that?
Me: Elevated Lp(a) is a common genetic cholesterol disorder that I have.
Friend: Wait. I thought you had … Read More →