written by: Stacey, Family Heart Foundation board member and living with FHI am so very, very lucky!Imagine 49 years ago being 6 years old and learning that your father has died.Imagine finding out that you and your only sibling have the same disease that killed him and that there is no treatment.And … Read More →
“[PCSK9 inhibitors] represent a new era of hope for us,” said Katherine Wilemon, founder and president of the Family Heart Foundation, an advocacy group. “We tend to take everything out there that is available, and even with that we can’t get our LDL levels down to a ‘safe’ level.”Ms. … Read More →
Today families living with familial hypercholesterolemia (FH) have new hope that they can win the fight against aggressive premature heart disease. Individuals with FH need all the help they can get to manage this risk factor encoded in their genes. Fortunately, more help is on the way for those who … Read More →
The Association of Preventive Cardiologists (ASPC) will celebrate their 30th anniversary at their 4th Annual CVD Prevention Conference this July 31-August 2 in Boca Raton, FL. The conference will offer cutting-edge evidence-based lectures, discussions, and debates regarding the latest advances, current … Read More →
The European Society of Cardiology (ESC) will host the ESC Congress this summer, August 29 – September 2, in London, UK. At this congress, the global cardiology community will convene to contribute to global awareness of the latest clinical trials and breakthrough discoveries in cardiology, discuss how … Read More →
The FH Global Summit is an annual event dedicated to the science and treatment of familial hypercholesterolemia (FH). It is a global gathering of medical experts, patient advocacy organizations, health care providers, and individuals with FH. The two-day event features compelling presentations that provide … Read More →
Global Genes will be hosting their Fourth Annual RARE Patient Advocacy Summit this September 24th to 25th in Huntington Beach, California. This year’s Summit aims to equip patients, caregivers, and advocates with actionable next steps, whether they are recently diagnosed, building a disease community, … Read More →
News of the Week for Many, News of a Lifetime for Those With FHThe FDA Advisory Committee’s decision June 9th and 10th to recommend the approval of two novel LDL-lowering treatments (known as PCSK9 inhibitors) was the news of the week for many. But for people living with familial hypercholesterolemia, … Read More →
“You really made a difference by coming today,” Deborah McCall, a member of the US Food and Drug Administration (FDA) advisory committee said. She was referring to Colleen McCready, a FH advocate, and the other individuals with FH in attendance at the hearing. It was the second day of the FDA … Read More →
Scott Radabaugh has become one of the most active faces in the familial hypercholesterolemia (FH) community. This past year he has had multiple stories written about him, assisted in the Family Heart Foundation’s Advocates for Awareness training, sent out over a thousand letters to cardiac rehabilitation … Read More →
