Running 4 Rare!

1 Comment

Kyriakos Economides

Kyriakos Economides is doing something extraordinary on Monday, April 18. He is running the Boston Marathon in honor of Christian and Max, and others who are living with Homozygous Familial Hypercholesterolemia (HoFH) as well as all those living with rare diseases. HoFH is the … Read More →

FH and Personalized Medicine

1 Comment

The Personalized Medicine Coalition has recognized FH treatments among those approved in 2015 by the FDA as personalized medicines.
“More Than 25 Percent of the Novel New Drugs Approved by FDA in 2015 are Personalized Medicines The transformation of health care from one-size-fits-all, trial-and-error … Read More →

Today is Rare Disease Day!

No Comments

Today, the Family Heart Foundation recognizes those living with homozygous familial hypercholesterolemia (HoFH) and those we have lost too soon to this devastating disorder. While FH is common, HoFH is rare, affecting 1 in 160,000 people worldwide with significantly accelerated heart disease.

The … Read More →