Article from the Summer 2016 Issue of Heart Insight by Jon Caswell
It seems to Bill Linsman of Los Angeles that he always had heart issues, but then so did his father. Bill had his first heart attack at age 38, then bypass surgery at 50. He had another heart attack in 2008, at 63, as stents were … Read More →
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
I made it!! I cannot believe I made it in one piece, but I did – I lived through my first week back at work, after being away for 3 months to recover for open heart surgery.
My cardiologist wrote me a note, to … Read More →
Written by Jennifer Huber on April 26, 2016 in Stanford Medicine’s Scope Blog
New research shows that familial hypercholesterolemia — a genetic condition that leads to high LDL cholesterol — is commonly diagnosed late and patients often don’t get adequate treatment. FH can … Read More →
Posted on April 25, 2016 in preventivecardiologyinc.com
By Seth J. Baum MD
I was fortunate to have the opportunity to speak at length with Matt Perrone prior to his submitting an April 20th article on the PSCK9 inhibitors’ unexpectedly low uptake in the medical community. His piece … Read More →
Kyriakos Economides
Kyriakos Economides is doing something extraordinary on Monday, April 18. He is running the Boston Marathon in honor of Christian and Max, and others who are living with Homozygous Familial Hypercholesterolemia (HoFH) as well as all those living with rare diseases. HoFH is the … Read More →
Familial Hypercholesterolemia was the topic of Department of Medicine Grand Rounds on March 3 at both Montefiore and Einstein in New York City. Dr. James Underberg, Clinical Assistant Professor of Medicine at NYU School of Medicine and NYU Center for Prevention of Cardiovascular Disease, Director of … Read More →
Family Heart Foundation volunteer Advocates for Awareness, Tom Weiser, and Michelle and Jason Watts, were with Cat Davis Ahmed, Director of Outreach at the National Institutes of Health and on Capitol Hill in Washington, DC for Rare Disease Week representing those in the FH Community with Homozygous … Read More →
The Personalized Medicine Coalition has recognized FH treatments among those approved in 2015 by the FDA as personalized medicines.
“More Than 25 Percent of the Novel New Drugs Approved by FDA in 2015 are Personalized Medicines The transformation of health care from one-size-fits-all, trial-and-error … Read More →
Today, the Family Heart Foundation recognizes those living with homozygous familial hypercholesterolemia (HoFH) and those we have lost too soon to this devastating disorder. While FH is common, HoFH is rare, affecting 1 in 160,000 people worldwide with significantly accelerated heart disease.
The … Read More →
Cat Davis Ahmed, Family Heart Foundation Director of Outreach, participated in the National Health Council’s Value Rubric Roundtable on February 1 in Washington, DC.
the Family Heart Foundation is working to have your voice heard in policy discussions that affect you. The question of value and … Read More →
