Father's Day

Hope this Father’s Day from Dads in our Family Heart Community

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Every year we dedicate a Sunday to our fathers and father-figures. They guide us through life’s toughest moments, teach us how to stand on our own two feet, and give us love no matter what. We spend the day recognizing those important members of our family, but when you live with a genetic condition … Read More →


Mothers Day

Mother’s Day Reflections from Moms in our Community Living with Genetic Dyslipidemias

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Mother’s Day is a beautiful day devoted to the mothers and mother-figures who give us life, nurture our growth, and love us unconditionally. It is filled with emotion and gratitude. When you live with a genetic condition like familial hypercholesterolemia (FH) or high lipoprotein(a), Lp(a), those … Read More →


Family Heart Ambassador - Brianna's Story - Living with FH

HoFH Awareness

Reflections from the 2024 HoFH Gathering

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I am one of the 1 in 300,000 individuals in the U.S. living with homozygous familial hypercholesterolemia (HoFH). HoFH is a rare disease, and when you live with a rare disease, it can often feel lonely – by definition not many others have the same disease. So, you can imagine how impactful it was … Read More →


Chloe shares about living with HoFH

A Conversation with Chloe: Living with HoFH

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Chloe’s family has made advocacy a family tradition. Her father, Scott, and her brother, Luke, are Family Heart Foundation Ambassadors, and her sister Hannah will be training to be an Ambassador soon! Scott even decorated his beloved bike to transform it into the Motorcycle that Saves Lives. Today, … Read More →


Advocacy Highlights 2023

USPSTF

Standing in the Way of Pediatric Screening

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The Family Heart Foundation’s Back and Forth with the United States Preventive Services Task Force

Since 2011 the American Academy of Pediatrics (AAP) and the National Institutes of Health (NIH) have recommended screening children at the age of 2 if they have a family history of premature vascular … Read More →


Research

2023 Family Heart Foundation Research Highlights

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When it comes to the diagnosis and treatment of familial hypercholesterolemia (FH) and elevated lipoprotein(a), or Lp(a), there are still so many unanswered questions.
What we have learned from our research is impacting peoples’ lives right now. We are using artificial intelligence to address the … Read More →


Shining a Light on LDL Cholesterol Management in America

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September is National Cholesterol Education Month, and that makes it the perfect time to shine a light on cholesterol management in America. Family Heart Foundation research shows that 70% of Americans at high-risk for cardiovascular disease never get their LDL (“bad”) cholesterol to recommended … Read More →


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