Chloe shares about living with HoFH

A Conversation with Chloe: Living with HoFH

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Chloe’s family has made advocacy a family tradition. Her father, Scott, and her brother, Luke, are Family Heart Foundation Ambassadors, and her sister Hannah will be training to be an Ambassador soon! Scott even decorated his beloved bike to transform it into the Motorcycle that Saves Lives. Today, … Read More →


Advocacy Highlights 2023

USPSTF

Standing in the Way of Pediatric Screening

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The Family Heart Foundation’s Back and Forth with the United States Preventive Services Task Force

Since 2011 the American Academy of Pediatrics (AAP) and the National Institutes of Health (NIH) have recommended screening children at the age of 2 if they have a family history of premature vascular … Read More →


Research

2023 Family Heart Foundation Research Highlights

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When it comes to the diagnosis and treatment of familial hypercholesterolemia (FH) and elevated lipoprotein(a), or Lp(a), there are still so many unanswered questions.
What we have learned from our research is impacting peoples’ lives right now. We are using artificial intelligence to address the … Read More →


Shining a Light on LDL Cholesterol Management in America

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September is National Cholesterol Education Month, and that makes it the perfect time to shine a light on cholesterol management in America. Family Heart Foundation research shows that 70% of Americans at high-risk for cardiovascular disease never get their LDL (“bad”) cholesterol to recommended … Read More →


Have You Ever Thought You Might Have FH? – Madi’s Story

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Madi always knew high cholesterol ran in her family, but she assumed everyone had it under control. That’s why one day in 2016 caught her so off guard. She was just 23 years old, but she knew she was having a heart attack.

“It kind of happened out of nowhere,” says Madi. “I had no symptoms … Read More →


Fundraise

Fun and Easy Fundraising Ideas You Probably Haven’t Considered

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The mission of the Family Heart Foundation is to save generations of families from heart disease through timely identification and improved care of familial hypercholesterolemia (FH) and elevated lipoprotein(a), also knowns as Lp(a).
One way you can join in this mission is by raising awareness … Read More →


Laurence and a waterfall

These Are My People: Laurence’s Story

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“I think the hardest part of my story is that I didn’t know anything. I’m still coming to grips with that.”
Laurence grew up in Ireland and came to the US in the early 1990s. He always considered himself a very healthy person with an allergy problem. “I look after my health, I do all my … Read More →


Mackenzie's Story

Life After Your Loved One’s Heart Attack

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I’m not sure where this story starts. When I ask myself, what’s life been like since my mom’s heart attack, I have to ask, which one?
Does the story start with the heart attack she didn’t know she had? Does it start with the one she nearly didn’t survive? Does it start with her emergency … Read More →


Cat Davis Ahmed's Familial Hypercholesterolemia Story

Remembering Tom Davis

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He worked hard to outrun FH

This is my first Father’s Day without my dad, Tom Davis, and I miss him.
He was 82 when he died December 7, 2022. It was only five months after my mom, Judy, passed away. Like so many of the families I have worked with at the Family Heart Foundation over the past 10 years, … Read More →


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