Chloe shares about living with HoFH

A Conversation with Chloe: Living with HoFH

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Chloe’s family has made advocacy a family tradition. Her father, Scott, and her brother, Luke, are Family Heart Foundation Ambassadors, and her sister Hannah will be training to be an Ambassador soon! Scott even decorated his beloved bike to transform it into the Motorcycle that Saves Lives. Today, … Read More →


USPSTF

Standing in the Way of Pediatric Screening

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The Family Heart Foundation’s Back and Forth with the United States Preventive Services Task Force

Since 2011 the American Academy of Pediatrics (AAP) and the National Institutes of Health (NIH) have recommended screening children at the age of 2 if they have a family history of premature vascular … Read More →


Have You Ever Thought You Might Have FH? – Madi’s Story

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Madi always knew high cholesterol ran in her family, but she assumed everyone had it under control. That’s why one day in 2016 caught her so off guard. She was just 23 years old, but she knew she was having a heart attack.

“It kind of happened out of nowhere,” says Madi. “I had no symptoms … Read More →


When Going Vegan Doesn’t Lower LDL: Liz’s Story

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Liz found out she had high cholesterol when she was just 10 years old. “It wasn’t too shocking,” she says. “We knew my dad’s family had a history of high cholesterol and heart disease.” Her uncle passed from a heart attack when he was just 39, and Liz remembers her grandmother’s cholesterol … Read More →


Mackenzie's Story

Life After Your Loved One’s Heart Attack

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I’m not sure where this story starts. When I ask myself, what’s life been like since my mom’s heart attack, I have to ask, which one?
Does the story start with the heart attack she didn’t know she had? Does it start with the one she nearly didn’t survive? Does it start with her emergency … Read More →


Family Heart Advocate Daniel H.

Why I Race: My Story Could Have Been Different

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My mother died of a heart attack when she was just 46 years old. It was the late 1960s, and I was a young kid – just 13 years old. At that time, we were only beginning to learn the connection between cholesterol and cardiovascular disease. Stents were still in development, and medical science was … Read More →


Family Heart Advocate - Charlotte M.

Not only did she give me life, but she also saved it

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After you’ve lost your mom, Mother’s Day is complicated. Sadness and “what if’s” mix with gratitude and “I remember when’s.” My heart swells with love for the woman I was fortunate enough to call “Mom.” And even though I talk about her in the past tense, my swollen heart still … Read More →


Race to Save More Hearts - Charlotte

Why I Race: Team Breathe Strength

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The Race to Save More Families More Hearts has begun, and we have some great races going on across the familial hypercholesterolemia (FH) and lipoprotein(a), also known as Lp(a), communities.
One such race is Charlotte’s. She’s using her social media and in-person classes at her New York yoga … Read More →


Xanthomas or Molluscum?

Familial Hypercholesterolemia story