Familial Hypercholesterolemia story

Personal Story from Advocate for Awareness of living with Homozygous Familial Hypercholesterolemia

Jessica’s Story

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For Seven Years I Thought I had a Perfectly Healthy Child

When Jessica’s father died of a heart attack at the young age of 54, she didn’t know the reason could be genetic. “He was a stubborn man who never went to the doctor,” explains Jessica. But when the doctors told her that her total cholesterol … Read More →


Fern - Living with Familial Hypercholesterolemia (FH)

Tom's Story - Living with HoFH

Gradney Family Story - Familial Hypercholesterolemia and high Lipoprotein(a)

None of us have to be there again

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My name is Kristen Gradney, and I am the Senior Director of Children’s Health at Our Lady of the Lake Regional Medical Center in Baton Rouge, Louisiana. My husband, Chad Gradney, was diagnosed with familial hypercholesterolemia (FH) in 2013.
I’m also a mother to the two most amazing children, … Read More →


When You Have Both: Managing FH and High Lp(a)

When You Have Both: Managing FH and High Lp(a)

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March 24th was the first ever Lipoprotein(a) Awareness Day, and my conversations about it went something like this:
 
Me: Did you know today is Lp(a) Awareness Day?
Friend: What’s that?
Me: Elevated Lp(a) is a common genetic cholesterol disorder that I have.
Friend: Wait. I thought you had … Read More →


Family Heart Foundation Advocate for high Lipoprotein(a) - Gail

Dave R Advocate for Awareness for familial hypercholesterolemia

When all the warning signs are there, but a missed diagnosis leads to heart disease

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I lived with Familial Hypercholesterolemia (FH) for my whole life, but didn’t learn about my diagnosis until I was thirty-five (35) years old. There were so many warning signs along the way that were missed or ignored, and I want to share my story so that it doesn’t happen to someone else.
 
When … Read More →


Genetics, Heart Disease, and the Game of Life

Genetics, Heart Disease, and the Game of Life

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Everyone gets dealt their own hand of cards in the game of life. I inherited two different genetic disorders that each lead to atherosclerosis; a mutation that causes high Lipoprotein(a) and a mutation that causes high LDL Cholesterol (LDL-C) levels. This means that that from birth, high levels of … Read More →


New Research to Improve Screening for FH