Family Heart Advocate Daniel H.

Why I Race: My Story Could Have Been Different

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My mother died of a heart attack when she was just 46 years old. It was the late 1960s, and I was a young kid – just 13 years old. At that time, we were only beginning to learn the connection between cholesterol and cardiovascular disease. Stents were still in development, and medical science was … Read More →


Family Heart Advocate - Charlotte M.

Not only did she give me life, but she also saved it

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After you’ve lost your mom, Mother’s Day is complicated. Sadness and “what if’s” mix with gratitude and “I remember when’s.” My heart swells with love for the woman I was fortunate enough to call “Mom.” And even though I talk about her in the past tense, my swollen heart still … Read More →


Race to Save More Hearts - Charlotte

Why I Race: Team Breathe Strength

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The Race to Save More Families More Hearts has begun, and we have some great races going on across the familial hypercholesterolemia (FH) and lipoprotein(a), also known as Lp(a), communities.
One such race is Charlotte’s. She’s using her social media and in-person classes at her New York yoga … Read More →


Xanthomas or Molluscum?

Familial Hypercholesterolemia story

Personal Story from Advocate for Awareness of living with Homozygous Familial Hypercholesterolemia

Jessica’s Story

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For Seven Years I Thought I had a Perfectly Healthy Child

When Jessica’s father died of a heart attack at the young age of 54, she didn’t know the reason could be genetic. “He was a stubborn man who never went to the doctor,” explains Jessica. But when the doctors told her that her total cholesterol … Read More →


Fern - Living with Familial Hypercholesterolemia (FH)

Tom's Story - Living with HoFH

Gradney Family Story - Familial Hypercholesterolemia and high Lipoprotein(a)

None of us have to be there again

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My name is Kristen Gradney, and I am the Senior Director of Children’s Health at Our Lady of the Lake Regional Medical Center in Baton Rouge, Louisiana. My husband, Chad Gradney, was diagnosed with familial hypercholesterolemia (FH) in 2013.
I’m also a mother to the two most amazing children, … Read More →


When You Have Both: Managing FH and High Lp(a)

When You Have Both: Managing FH and High Lp(a)

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March 24th was the first ever Lipoprotein(a) Awareness Day, and my conversations about it went something like this:
 
Me: Did you know today is Lp(a) Awareness Day?
Friend: What’s that?
Me: Elevated Lp(a) is a common genetic cholesterol disorder that I have.
Friend: Wait. I thought you had … Read More →