Family Hypercholesterolemia story - Isabelle B.

Why I Race: Knowledge Brings Positive Change

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As a new team member of the Family Heart Foundation, I was thrilled to join an organization aligned so well with my goal to make a positive impact on peoples’ lives.
Not only was I eager to help others, but joining the Family Heart team in March of 2023 meant I would have even more opportunities … Read More →


Family Heart Advocate Daniel H.

Why I Race: My Story Could Have Been Different

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My mother died of a heart attack when she was just 46 years old. It was the late 1960s, and I was a young kid – just 13 years old. At that time, we were only beginning to learn the connection between cholesterol and cardiovascular disease. Stents were still in development, and medical science was … Read More →


Family Heart Advocate - Charlotte M.

Not only did she give me life, but she also saved it

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After you’ve lost your mom, Mother’s Day is complicated. Sadness and “what if’s” mix with gratitude and “I remember when’s.” My heart swells with love for the woman I was fortunate enough to call “Mom.” And even though I talk about her in the past tense, my swollen heart still … Read More →


Life After a Heart Attack - Ally's Story

Race to Save More Families More Hearts

Race to Save More Hearts - Charlotte

Why I Race: Team Breathe Strength

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The Race to Save More Families More Hearts has begun, and we have some great races going on across the familial hypercholesterolemia (FH) and lipoprotein(a), also known as Lp(a), communities.
One such race is Charlotte’s. She’s using her social media and in-person classes at her New York yoga … Read More →


Stacey's story

Familial Hypercholesterolemia story

Personal Story from Advocate for Awareness of living with Homozygous Familial Hypercholesterolemia

Jessica’s Story

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For Seven Years I Thought I had a Perfectly Healthy Child

When Jessica’s father died of a heart attack at the young age of 54, she didn’t know the reason could be genetic. “He was a stubborn man who never went to the doctor,” explains Jessica. But when the doctors told her that her total cholesterol … Read More →


Betty Jo Familial Hypercholesterolemia (FH) Story