HoFH Awareness

Reflections from the 2024 HoFH Gathering

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I am one of the 1 in 300,000 individuals in the U.S. living with homozygous familial hypercholesterolemia (HoFH). HoFH is a rare disease, and when you live with a rare disease, it can often feel lonely – by definition not many others have the same disease. So, you can imagine how impactful it was … Read More →


Chloe shares about living with HoFH

A Conversation with Chloe: Living with HoFH

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Chloe’s family has made advocacy a family tradition. Her father, Scott, and her brother, Luke, are Family Heart Foundation Ambassadors, and her sister Hannah will be training to be an Ambassador soon! Scott even decorated his beloved bike to transform it into the Motorcycle that Saves Lives. Today, … Read More →


The US is Frequently Missing the HoFH Diagnosis

HoFH in the U.S.