Family Hypercholesterolemia story - Isabelle B.

Why I Race: Knowledge Brings Positive Change

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As a new team member of the Family Heart Foundation, I was thrilled to join an organization aligned so well with my goal to make a positive impact on peoples’ lives.
Not only was I eager to help others, but joining the Family Heart team in March of 2023 meant I would have even more opportunities … Read More →


Family Heart Advocate Daniel H.

Why I Race: My Story Could Have Been Different

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My mother died of a heart attack when she was just 46 years old. It was the late 1960s, and I was a young kid – just 13 years old. At that time, we were only beginning to learn the connection between cholesterol and cardiovascular disease. Stents were still in development, and medical science was … Read More →


Family Heart Advocate - Charlotte M.

Not only did she give me life, but she also saved it

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After you’ve lost your mom, Mother’s Day is complicated. Sadness and “what if’s” mix with gratitude and “I remember when’s.” My heart swells with love for the woman I was fortunate enough to call “Mom.” And even though I talk about her in the past tense, my swollen heart still … Read More →


Personal Story - lipoprotein apheresis

Stacey's story

Xanthomas or Molluscum?

Cholesterol Education Month Media Tour

Familial Hypercholesterolemia story

Personal Story from Advocate for Awareness of living with Homozygous Familial Hypercholesterolemia

Jessica’s Story

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For Seven Years I Thought I had a Perfectly Healthy Child

When Jessica’s father died of a heart attack at the young age of 54, she didn’t know the reason could be genetic. “He was a stubborn man who never went to the doctor,” explains Jessica. But when the doctors told her that her total cholesterol … Read More →


Tom's Story - Living with HoFH

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