Personal Story from Advocate for Awareness of living with Homozygous Familial Hypercholesterolemia

Jessica’s Story

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For Seven Years I Thought I had a Perfectly Healthy Child

When Jessica’s father died of a heart attack at the young age of 54, she didn’t know the reason could be genetic. “He was a stubborn man who never went to the doctor,” explains Jessica. But when the doctors told her that her total cholesterol … Read More →


Patricia Y. Family Heart Foundation Advocate for Awareness

Dave R Advocate for Awareness for familial hypercholesterolemia

When all the warning signs are there, but a missed diagnosis leads to heart disease

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I lived with Familial Hypercholesterolemia (FH) for my whole life, but didn’t learn about my diagnosis until I was thirty-five (35) years old. There were so many warning signs along the way that were missed or ignored, and I want to share my story so that it doesn’t happen to someone else.
 
When … Read More →


Abby W shares her FH and HoFH family story

#KnowFH for FH Awareness Day

News Alert - FDA Approves Evinacumab

FDA Listening Session on HoFH

My Journey with FH and Heart Disease

My Journey with FH and Heart Disease

Avery - 11 year old girl with HoFH

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