Father's Day

Hope this Father’s Day from Dads in our Family Heart Community

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Every year we dedicate a Sunday to our fathers and father-figures. They guide us through life’s toughest moments, teach us how to stand on our own two feet, and give us love no matter what. We spend the day recognizing those important members of our family, but when you live with a genetic condition … Read More →


Family Heart Ambassador - Brianna's Story - Living with FH

HoFH Awareness

Reflections from the 2024 HoFH Gathering

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I am one of the 1 in 300,000 individuals in the U.S. living with homozygous familial hypercholesterolemia (HoFH). HoFH is a rare disease, and when you live with a rare disease, it can often feel lonely – by definition not many others have the same disease. So, you can imagine how impactful it was … Read More →


Chloe shares about living with HoFH

A Conversation with Chloe: Living with HoFH

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Chloe’s family has made advocacy a family tradition. Her father, Scott, and her brother, Luke, are Family Heart Foundation Ambassadors, and her sister Hannah will be training to be an Ambassador soon! Scott even decorated his beloved bike to transform it into the Motorcycle that Saves Lives. Today, … Read More →



Have You Ever Thought You Might Have FH? – Madi’s Story

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Madi always knew high cholesterol ran in her family, but she assumed everyone had it under control. That’s why one day in 2016 caught her so off guard. She was just 23 years old, but she knew she was having a heart attack.

“It kind of happened out of nowhere,” says Madi. “I had no symptoms … Read More →


When Going Vegan Doesn’t Lower LDL: Liz’s Story

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Liz found out she had high cholesterol when she was just 10 years old. “It wasn’t too shocking,” she says. “We knew my dad’s family had a history of high cholesterol and heart disease.” Her uncle passed from a heart attack when he was just 39, and Liz remembers her grandmother’s cholesterol … Read More →


Laurence and a waterfall

These Are My People: Laurence’s Story

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“I think the hardest part of my story is that I didn’t know anything. I’m still coming to grips with that.”
Laurence grew up in Ireland and came to the US in the early 1990s. He always considered himself a very healthy person with an allergy problem. “I look after my health, I do all my … Read More →


Mackenzie's Story

Life After Your Loved One’s Heart Attack

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I’m not sure where this story starts. When I ask myself, what’s life been like since my mom’s heart attack, I have to ask, which one?
Does the story start with the heart attack she didn’t know she had? Does it start with the one she nearly didn’t survive? Does it start with her emergency … Read More →