March 4th saw the kickoff of the American College of Cardiology’s Annual Meeting in New Orleans. For three days, leading clinicians and organizations presented thought-provoking research in the world of cardiology. The Family Heart Foundation presented our research in a scientific poster during … Read More →
You made it possible!
Our champion racers, generous family matching benefactors, and hundreds of caring donors raised $225,077!
41 individuals and 12 teams virtually raced across the nation during the month of November to increase understanding of inherited cardiovascular disease in the Race to … Read More →
On November 5th, in the company of leading pharmaceutical companies, healthcare systems, and researchers, we shared the amazing progress the Family Heart Foundation has made in its efforts to save generations of families affected by familial hypercholesterolemia (FH) and elevated Lipoprotein(a), also … Read More →
The Institute for Clinical and Economic Review (ICER) – an organization that produces reports that analyze the cost effectiveness of drugs and other medical services – has highlighted the improved cost-effectiveness of high cholesterol treatments inclisiran and bempedoic acid in patients who have … Read More →
Florida State Governor and Miami Dade County Issued Proclamations in Recognition of September 24 as FH Awareness Day
MIAMI (September 26, 2019) – More than 100 VIPS gathered to acknowledge Familial hypercholesterolemia (FH) day on September 24th at the St. Regis Bal Harbour Resort for a panel … Read More →
“Great scientific progress, efficacious therapies, and elegantly written guidelines don’t always end up helping the people they were intended to serve. This is a sobering fact, and in many ways, is the story of familial hypercholesterolemia,” asserted Katherine Wilemon, Founder and CEO of … Read More →
the Family Heart Foundation is working to ensure your voice, backed up by clinical and real world data, is heard loud and clear in conversations that impact your health. We are working with patients, doctors, nurse practitioners, policy makers, drug manufacturers and payers to make sure Familial Hypercholesterolemia … Read More →
Photo (left to right): Dr. Anne Goldberg, Dr. Seth Baum, Mackenzie AmesAn engaged gathering of medical professionals met for the Florida Chapter of The American College of Cardiology’s continuing medical education series on FH last week. This is the second in a series of eight CME lectures the … Read More →
News of the Week for Many, News of a Lifetime for Those With FHThe FDA Advisory Committee’s decision June 9th and 10th to recommend the approval of two novel LDL-lowering treatments (known as PCSK9 inhibitors) was the news of the week for many. But for people living with familial hypercholesterolemia, … Read More →
“You really made a difference by coming today,” Deborah McCall, a member of the US Food and Drug Administration (FDA) advisory committee said. She was referring to Colleen McCready, a FH advocate, and the other individuals with FH in attendance at the hearing. It was the second day of the FDA … Read More →