Reflections from the 2024 HoFH Gathering

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I am one of the 1 in 300,000 individuals in the U.S. living with homozygous familial hypercholesterolemia (HoFH). HoFH is a rare disease, and when you live with a rare disease, it can often feel lonely – by definition not many others have the same disease. So, you can imagine how impactful it was … Read More →


Chloe shares about living with HoFH

A Conversation with Chloe: Living with HoFH

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Chloe’s family has made advocacy a family tradition. Her father, Scott, and her brother, Luke, are Family Heart Foundation Ambassadors, and her sister Hannah will be training to be an Ambassador soon! Scott even decorated his beloved bike to transform it into the Motorcycle that Saves Lives. Today, … Read More →


PCSK9 Inhibitor Research Paper

PCSK9 Inhibitor Research Paper

Advocacy Highlights 2023

Giving

American Heart Association 2023

Highlights from the American Heart Association’s Annual Scientific Sessions

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The American Heart Association’s (AHA) 2023 Scientific Session was held in Philadelphia from November 11-13. This is one of the premier scientific meetings of the year with over 10,000 clinicians and researchers in attendance. Sessions focused on the latest research and insights to improve cardiovascular … Read More →



When Going Vegan Doesn’t Lower LDL: Liz’s Story

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Liz found out she had high cholesterol when she was just 10 years old. “It wasn’t too shocking,” she says. “We knew my dad’s family had a history of high cholesterol and heart disease.” Her uncle passed from a heart attack when he was just 39, and Liz remembers her grandmother’s cholesterol … Read More →


Fundraise

Fun and Easy Fundraising Ideas You Probably Haven’t Considered

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The mission of the Family Heart Foundation is to save generations of families from heart disease through timely identification and improved care of familial hypercholesterolemia (FH) and elevated lipoprotein(a), also knowns as Lp(a).
One way you can join in this mission is by raising awareness … Read More →


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