FH Awareness Day
FH Awareness Day was established in 2012 by the Family Heart Foundation (formerly the FH Foundation) to raise awareness of familial hypercholesterolemia (FH) worldwide. This annual event is held on September 24, during National Cholesterol Education Month.
Below are all the resources you need to help us let everyone #KnowFH.
Why it's Important
Millions of people around the world don't know they and their families are at risk for early heart disease, heart attacks, stroke, and even death. With better awareness and early diagnosis, those with FH can reduce their risk for heart disease by 80%. FH Awareness Day is a pivotal way for us all to save more families and more hearts.
Facts to Share on FH Awareness Day
• FH is one of the most common genetic conditions that causes high cholesterol. It is not caused by the food you eat.
• 1.3 million people in the U.S., and 30 million people worldwide, have FH. Only 30% are diagnosed.
• If left untreated, FH leads to heart attacks, cardiovascular heart disease, and even death in the prime of life.
• 1 in 5 heart attacks in people under 45 are caused by FH.
• FH is a family condition. If you have FH, each of your first-degree relatives (parents, siblings, children) has a 50% chance of inheriting it.
• In many cases, people with FH get misdiagnosed and do not receive the care they need. If you suspect you have FH, please consult your healthcare provider or contact a Care Navigator.
Content to Share on FH Awareness Day
Social Media and Printable Content
Below you will find this year's content for FH Awareness Day! Download and share on your Instagram, Facebook, or Twitter to spread the word. Or print and post them in your clinic or local coffee house.
- Social Posts (X/Facebook and Instagram)
- The #KnowFH Social
- Infographics and Posters
- FH Personal Stories
The #KnowFH Social is a quick-paced, virtual conversation held across social media platforms. We want to cover feeds with information on familial hypercholesterolemia (FH). It’s a simple and quick way to raise awareness, led by the Family Heart Foundation.
Share our videos!
Follow us on social media and share our video posts: Facebook, Twitter, Instagram, LinkedIn, TikTok, and YouTube. You can use the text below with your social media post:
If heart disease or stroke runs in your family, a genetic cholesterol disorder may be the cause. Visit FamilyHeart.org to learn more.
Remember to use hashtag #KnowFH or #FHAwarenessDay. And be sure to tag the Family Heart Foundation!
September 24 is FH Awareness Day
Getting your LDL Cholesterol to the safe zone
Walking around with uncontrolled LDL is like walking into oncoming traffic. Get yourself out of the danger zone by learning more at FamilyHeart.org.
What is FH? A YouTube Short
What is Familial Hypercholesterolemia?
Genetic counselor, Heather Zierhut, explains how familial hypercholesterolemia (FH) causes inherited high cholesterol.
Advocate Stories
Hear from real individuals living with Familial Hypercholesterolemia (FH) and/or Homozygous FH (HoFH). Read and share to raise awareness of this hidden genetic condition. Check back in as we will be sharing a new FH or HoFH story each week!
FH Awareness Day is a great time to hold a fundraiser in your community! Run a race, hold a dinner party, or simply ask your friends and family for support in honor of FH Awareness Day.
September 11
September 24
FH Awareness Day
September 28
Ask Me Anything - FH Edition
Terms of Use
The purpose of the Family Heart FH Awareness Day Tool Kit is to help volunteers and partners raise awareness of Familial Hypercholesterolemia (FH).
These materials are intended for use as is and cannot be altered without written permission from the Family Heart Foundation.
By using this Tool Kit, you agree to:
- include the Family Heart Foundation logo
- credit all patient stories to the Family Heart Foundation and retain the identification of Family Heart Foundation Advocates for Awareness
- refrain from altering any of the materials — e.g. graphics, videos and social media posts, stories — without written permission from the Family Heart Foundation, this includes:
- removing the Family Heart Foundation logo
- adding your organization’s logo
- changing the copy
- swapping or adding images
- adhere to copyright guidelines and style guide
If you have any questions about the above terms of use, please contact the Family Heart Foundation Creative Director, Susan Seim, at sms@familyheart.org.
