FH Community in Action

The FH Community in Action is made up of individuals with FH and the medical professionals who treat them. Through the Family Heart Foundation, we work together to raise awareness, support our members, drive research, and advocate for improved diagnosis and care.

Join us to help drive the change you want to see for families with FH.

The FH Global Summit in September 2017 included a Community Forum for individuals with FH. Attendees shared their stories, connected with a supportive community, heard from FH expert Dr. Seth Baum, and learned about what the Family Heart Foundation is doing to advocate on their behalf. Attending the 2017 FH Global Summit was a life-changing opportunity for patients like Jen Farnell, who remarked:

“It’s amazing to see how many doctors around the world are doing research to help with our condition. It was a once-in-a-lifetime opportunity to be able to meet world-renowned FH experts and tell them my story.”

For the first time ever, the Family Heart Foundation brought together the FH Iberoamerican Network and many country leaders from across North, Central and South America to host the Meeting of the Americas, following the FH Global Summit in September 2017. FH experts and leaders of national FH patient groups from 12 countries worked together to discuss a joint survey initiative to understand and address the serious lack of awareness of FH in these countries. the Family Heart Foundation will lead this effort by analyzing the survey results and returning the analyzed data back to each country to be used as a springboard to promote health care professional education and advocacy.

The FH Specialist’s Referral Network, our most requested tool, is a global resource to help individuals identify FH Specialists within their area. Joining our network will allow FH patients seeking care to easily locate your practice. If you are an FH Specialist, please add your practice to the map here.

If you are an individual impacted by FH, want to share your story, and become an active volunteer for the Family Heart Foundation, we welcome you to join our #FHamily and apply to become an FH Advocate for Awareness. Our next training session will be from January 26th – January 29th, 2018 in Arlington, Virginia. To learn more about our Advocates Program and to apply, please click below.

Facebook Discussion Group

Online Community Forum

CASCADE FH™ Patient Portal

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