Newly Diagnosed

What to do when you’re newly diagnosed with Familial Hypercholesterolemia or High Lipoprotein(a)

The diagnosis of familial hypercholesterolemia (FH) or high Lipoprotein (a), or Lp(a), can be very overwhelming. The first thing to do is take a deep breath… then maybe take another one.

There are a lot of emotions and questions to sort through but know this – you are not alone. The Family Heart Foundation is here with the tools and resources you need to treat and manage your condition.

The good news is that we are living in an extraordinary time of research and understanding of FH and high Lp(a). There are more treatments available now than ever before, and more are on the way. There is hope as we all strive for the same goal: More families. More hearts.

Tips for the Newly Diagnosed

Learn All You Can

Knowledge is power. Understanding FH and high Lp(a) can help you make the right decisions for you and your family.


Find the Right Care

Navigating the world of FH and high Lp(a) includes finding the right health care provider and handling complicated health insurance. We’re here to help.


Connect with Community

Even though these are family conditions, they can still make you feel isolated and alone. Trust that there are others who share your story, and we’ve cultivated groups to trade news and support.


Know Your Treatment Options

Lower Your Risk Factors

Just because your condition is genetic doesn’t mean there aren’t other changes you can make to your diet and lifestyle to decrease your risk of heart disease in the future.


Review Tools and Resources

The Family Heart Foundation offers tools and resources like webinars, blogs, toolkits, and a database of FH specialists.


Get Involved

Whether you want to participate in fundraisers, attend an event, share your story, or offer a donation, we welcome you to join us in raising awareness.


Become an Advocate

We are always looking for enthusiastic people to become Family Heart Foundation Advocates for Awareness.