Cat Davis Ahmed's Familial Hypercholesterolemia Story

Remembering Tom Davis

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He worked hard to outrun FH

This is my first Father’s Day without my dad, Tom Davis, and I miss him.
He was 82 when he died December 7, 2022. It was only five months after my mom, Judy, passed away. Like so many of the families I have worked with at the Family Heart Foundation over the past 10 years, … Read More →


Family Hypercholesterolemia story - Isabelle B.

Why I Race: Knowledge Brings Positive Change

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As a new team member of the Family Heart Foundation, I was thrilled to join an organization aligned so well with my goal to make a positive impact on peoples’ lives.
Not only was I eager to help others, but joining the Family Heart team in March of 2023 meant I would have even more opportunities … Read More →


Family Heart Advocate Daniel H.

Why I Race: My Story Could Have Been Different

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My mother died of a heart attack when she was just 46 years old. It was the late 1960s, and I was a young kid – just 13 years old. At that time, we were only beginning to learn the connection between cholesterol and cardiovascular disease. Stents were still in development, and medical science was … Read More →


Family Heart Advocate - Charlotte M.

Not only did she give me life, but she also saved it

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After you’ve lost your mom, Mother’s Day is complicated. Sadness and “what if’s” mix with gratitude and “I remember when’s.” My heart swells with love for the woman I was fortunate enough to call “Mom.” And even though I talk about her in the past tense, my swollen heart still … Read More →


The US is Frequently Missing the HoFH Diagnosis

HoFH in the U.S.

Race to Save More Hearts

5 Past Races to Inspire Your Race to Save More Hearts

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For six years the Family Heart Foundation community has taken on the challenge of raising awareness and funds in our Race to Save More Hearts. The name has changed over those years, but the passion of the participants has always been awe-inspiring.
People with familial hypercholesterolemia (FH), homozygous … Read More →


Lipoprotein(a) Awareness Day Recap

2023 Lipoprotein(a) Awareness Day Tweet-a-thon

A Roundup of the Best Tweets from the 2nd Annual Lp(a) Awareness Day Tweet-a-Thon

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On March 24, the Family Heart Foundation held their second annual Lp(a) Awareness Day Tweet-a-Thon. It’s an incredibly impactful way to spread awareness and educate others on high lipoprotein(a), also known as Lp(a). This year we reached over 12 million people with our hashtag #KnowLpa!
ICYMI, here … Read More →


Living with elevated Lipoprotein(a)

It Wasn’t a Panic Attack. It Was a Heart Attack.

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Jenny’s Lp(a) Story

I thought it was a panic attack. In fairness, I was only 41. A nonsmoker. A longtime vegetarian with good cholesterol numbers. As physically active as I could be while working a full-time job and wrangling a toddler.
But what happened in October 2019 wasn’t a panic attack. It … Read More →