In August of 2022, the American College of Cardiology (ACC) released an Expert Consensus Decision Pathway with new guidance for lowering LDL cholesterol.
An Expert Consensus Decision Pathway is a guiding tool for medical professionals. They are developed as new data and treatments are available, but … Read More →
Family Heart Foundation Study Shows Some Children With Homozygous Familial Hypercholesterolemia Miss Out On Decades Of Life-Saving Treatment
Only Children with the Most Severe HoFH are Diagnosed Before Adulthood, Putting those Not Identified Early at Risk for Heart Disease at a Young Age
New … Read More →
Look at the incredible reach we had together!
Together, we reached millions of people on multiple social media platforms and on national TV and radio in September. This outreach raises awareness of the need to address high cholesterol regardless of the cause, but especially when it is genetic.
So … Read More →
Lower Your Cholesterol to Help Decrease Your Risk for Heart Disease
This September for Cholesterol Education Month, our Founder and CEO, Katherine Wilemon, and Stanford Medicine Cardiologist and Scientific Advisory Board Member, Dr. Abha Khandelwal, talked with over 30 TV and radio shows across the … Read More →
The Journey to Accepting My FH Diagnosis
“We lost her unexpectedly. From the outside, she had no indication something was wrong.” Charlotte was only 17 when her mother passed away from a heart attack. “She was so petite,” Charlotte explains, “and she lived a very stress-free life. She was … Read More →
For Seven Years I Thought I had a Perfectly Healthy Child
When Jessica’s father died of a heart attack at the young age of 54, she didn’t know the reason could be genetic. “He was a stubborn man who never went to the doctor,” explains Jessica. But when the doctors told her that her total cholesterol … Read More →
You’re the Only One Who Will Speak Up for Your Child
Betty Jo’s husband went on cholesterol-lowering treatment when he was in his thirties. “It was the usual ‘high cholesterol runs in the family’ story,” she explains. The two got married, started having children, and lived their lives.
Their … Read More →
I Listened to the Lessons of My Mother
Fern’s family tree looks like most of ours – full of grandparents, aunts, uncles, and cousins. But her tree is also full of extremely early heart disease.
Like many people with familial hypercholesterolemia (FH) and high lipoprotein(a), or Lp(a), Fern’s … Read More →
Why We Have Cholesterol Education Month
When we are born, our arteries are clear and healthy. They carry blood, oxygen, and nutrients from our hearts to every part of our bodies. They are the channels of life.
But when our low-density lipoprotein (LDL) cholesterol gets too high, it damages and clogs … Read More →
Every year, our community comes together on FH Awareness Day to spread the word about Familial Hypercholesterolemia (FH). We’ve made progress, but the diagnosis is still missed 70% of the time in the United States. That number is even greater around the world.
Many live with the story that high … Read More →
