90% of individuals with Familial Hypercholesterolemia are not diagnosed
Familial hypercholesterolemia (FH) is a common life-threatening genetic condition that causes high cholesterol. Untreated, FH leads to early heart attacks and heart disease.*
Unfortunately, today only 10% of individuals with FH are diagnosed. Lack of awareness and understanding of in the medical community and public at large leave entire generations of families at risk.
Ora didn't have to lose her family to heart disease
Ora lost her father to a heart attack when she was only six. When pregnant at 20, she learned she had dangerously high cholesterol. Even though she began treatment, no one gave her a name for her condition.
Genetic high cholesterol
People with FH have a high amount of low density lipoprotein (LDL) or “bad cholesterol” due to a mutation in one of the genes that controls the way cholesterol is cleared by the body. As a result, cholesterol accumulates in the bloodstream and can ultimately build up in the walls of the arteries. Cholesterol build up in the artery wall is called hardening of the arteries, or atherosclerosis, and can lead to problems such as heart attacks and strokes in young adults and even children. FH is inherited and passed down through families.
When one individual with FH is diagnosed, it is important that all family members are screened for FH. Treatment should begin early. Although lifestyle and diet are important factors to staying heart healthy, for individuals with FH, that is not enough.