the Family Heart Foundation went to Capitol Hill on January 28-29 to raise awareness of Familial Hypercholesterolemia among our nation’s elected officials, and advocate for Federal funding for FH research.
Our 2019 class of 25 new volunteer FH Advocates for Awareness held 36 meetings with Congressional Offices from 21 states. the Family Heart Foundation’s FH Advocates were amazing, sharing their stories to help policy makers understand the devastating impact FH can have on families. They highlighted the incredible opportunity we all have to prevent heart disease with early diagnosis, family screening, and proactive treatment when we make FH a public health priority.
From California to Maine and Louisiana to Wisconsin, from the mountains of Colorado to the shores of Florida, and everywhere in between, our trained volunteers represented the 1.3 million Americans born with FH, 90 percent of whom don’t even know they have it. They took the fight to Capitol Hill to ask for Federal funding to support improved awareness, family screening, and research.
FH Can’t Wait – The time is now to stop heart disease caused by Familial Hypercholesterolemia. the Family Heart Foundation is grateful to all of our 115 FH Advocates for Awareness in 35 States and the amazing FH medical experts from our national CASCADE FH® Registry who lead the way in FH care, family screening, and research. If you want to make a difference for FH, please join us.