A Conversation with Chloe: Living with HoFH
Chloe’s family has made advocacy a family tradition. Her father, Scott, and her brother, Luke, are Family Heart Foundation Ambassadors, and her sister Hannah will be training to be an [...]
The US is Frequently Missing the HoFH Diagnosis
Breaking Down the Latest Family Heart Foundation Research on HoFH in America A new study from the Family Heart Foundation is the largest look at how individuals with homozygous familial hypercholesterolemia (HoFH) are being treated [...]
New Family Heart Foundation Study Reveals Systemic Underdiagnosis & Undertreatment of HoFH
VIEW ARTICLE Published in JAHA, Study Shows Delayed Diagnosis of HoFH, a Rare Disease, Leads to Premature Cardiovascular Disease PASADENA, Calif., May 2, 2023 – A new study [...]
Life When Someone You Love Has HoFH
6 Tips from an HoFH Grandma Some people look up to Captain America. Some people idolize Batman. Aletha’s superhero is her 11-year-old- granddaughter, Aubree. “As an [...]
New Research – Children and HOFH
Family Heart Foundation Study Shows Some Children With Homozygous Familial Hypercholesterolemia Miss Out On Decades Of Life-Saving Treatment Only Children with the Most Severe HoFH are Diagnosed Before Adulthood, Putting those [...]
Jessica’s Story
For Seven Years I Thought I had a Perfectly Healthy Child When Jessica’s father died of a heart attack at the young age of 54, she didn’t [...]
I Have a Ph.D. in Me: Patricia’s Story
Name a cholesterol-lowering treatment, Patricia Young has done it – and was probably among the first to take it. At 67 years old, Young may be the oldest [...]
Missed FH Signs | Prevent Heart Disease Now
I lived with Familial Hypercholesterolemia (FH) for my whole life, but didn’t learn about my diagnosis until I was thirty-five (35) years old. There were so many warning signs along [...]
I almost lost my father to heart disease before I was born
Growing up, every one of us has lost something special to us. For many people that special thing could be a sentimental object like a childhood toy, or a [...]
Today is FH Awareness Day
On September 24, lets raise our voices in our families, in our communities around the world, in clinics, and on social media to help people #KnowFH. When I was diagnosed [...]
