Advocacy Organizations

Global Genes

Mended Hearts

National Organization of Rare Diseases (NORD)

WomenHeart

Government Organizations

Center for Disease Control and Prevention

Patient Network FDA

Million Hearts

National Heart, Lung, and Blood Institute
Citizens for Public Action on Blood Pressure and Cholesterol, Inc.

National Institutes of Health

Professional Organizations

American Academy of Pediatrics

American College of Cardiology

American Society of Preventive Cardiology

Association of Black Cardiologists

American Heart Association

International Atherosclerosis Society

National Lipid Association

National Society of Genetic Counselors

Preventive Cardiac Nurses Association (PCNA)

MEDPED – Make Early Diagnosis to Prevent Early Death

Other Resources

MothertoBaby

Patient Worthy