Lipoprotein(a) Awareness Day Recap

We Raised Our Voices and Made a Difference

In 2022, the Family Heart Foundation launched the first Lipoprotein(a) Awareness Day on March 24th. This year we called on you to make the second annual Lp(a) Awareness Day a bigger success – and you did it! We were inspired to see that Lp(a) Awareness Day was recognized across the U.S. and all over the world. So many of you joined us in raising awareness of lipoprotein(a), also known as Lp(a). Thank you!

Together we reached over 78 million people.

#KnowLpa

We reached millions with social media

  • The #KnowLpa hashtag reached over 12.3 million people on Lp(a) Awareness Day.
  • In just one day, our Lp(a) social media posts appeared in peoples’ social media feeds more than 83,000 times.
  • There were over 1,000 tweets fired off and shared in just 30 minutes during our Tweet-a-Thon, if you missed it, you can see highlights here.

Our “Ask Me Anything” video has been viewed over 900 times and counting.

This Lp(a) Awareness Day we let out community drive the conversation. We asked for questions and let Dr. Gisette Reyes-Soffer answer them (Assistant Professor for Columbia University Irving Medical Center and Scientific Advisor for the Family Heart Foundation).

Lipoprotein(a) Awareness Day: TV and Radio Tour

Earlier this month, Katherine Wilemon (Founder & CEO, Family Heart Foundation) and Dr. Seth Baum (Flourish Research and Board Member, Family Heart Foundation) did radio and television interviews across the country to raise awareness of Lp(a) that resulted in 436 airings reaching over 66 million people!

Educating about lipoprotein(a) with webinars

We reach thousands of people with our educational webinars throughout the year. Check out our latest Lp(a) webinar featuring Dr. Henry Ginsberg here.

Making a difference

These are incredible numbers, but numbers alone don’t capture the amazing impact this day has had. Every time we share information about Lp(a) we have the chance to make a difference for a family. It brings to mind something Family Heart Foundation Board Member, Dr. Courtney Riley, a practicing pediatrician said about an encounter with a patient’s mom:


Recently, I had the mom of a patient ask me for an Lp(a) test by name, saying she heard it was related to a genetic form of heart disease and it ran in their family. I shared nothing, but just listened with goosebumps as she told me everything she knew about it.

I left that appointment thinking about “The Star Thrower.”

 

Once upon a time, there was an old man who used to go to the ocean to do his writing. He had a habit of walking on the beach every morning before he began his work. Early one morning, he was walking along the shore after a big storm had passed and found the vast beach littered with starfish as far as the eye could see, stretching in both directions. 

Off in the distance, the old man noticed a small boy approaching.  As the boy walked, he paused every so often and as he grew closer, the man could see that he was occasionally bending down to pick up an object and throw it into the sea.  The boy came closer still and the man called out, “Good morning!  May I ask what it is that you are doing?”

The young boy paused, looked up, and replied “Throwing starfish into the ocean. The tide has washed them up onto the beach and they can’t return to the sea by themselves,” the youth replied. “When the sun gets high, they will die, unless I throw them back into the water.”

The old man replied, “But there must be tens of thousands of starfish on this beach. I’m afraid you won’t really be able to make much of a difference.”

The boy bent down, picked up yet another starfish and threw it as far as he could into the ocean. Then he turned, smiled, and said, “It made a difference to that one!”

I continue to be honored to share my sister’s story and help her continue to make a difference, even if it’s one person at a time.


We agree, Dr. Riley, and on Lp(a) Awareness Day this community made a difference to over 78 million people. That goes such a long way to saving more families and more hearts – and we thank our community for making it possible!

 


The Family Heart Foundation gratefully acknowledges the generous support from our donors and corporate partners for Lipoprotein(a) Awareness Day:

CHAMPION

PARTNER

Amgen

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