Family Heart Foundation Webinars
Upcoming Webinars
Back to Basics: Familial Hypercholesterolemia
September 11, 2023
It never hurts to get back to basics. In honor of FH Awareness Day and Cholesterol Education Month, join us for a discussion on the fundamentals of FH – what is it? How is it treated? Who is at risk? And more. Register now!
Previous Webinars
A Walk Through New Family Heart HoFH Research
June 29, 2023
A study from the Family Heart Foundation is the largest look at how individuals with homozygous familial hypercholesterolemia (HoFH) are being treated in the United States today. Co-Author and Chief Medical Officer, Dr. Mary McGowan, will walk us through the findings in a webinar on June 29 with Family Heart Foundation Board Member and Co-Author, Allison Jamison.
Lipoprotein(a): Who should be tested and why?
March 28, 2023
This webinar reviews how elevated Lipoprotein(a), also known as Lp(a), increases cardiovascular event risk. We heard from an individual living with elevated Lp(a). We'll also discuss why you should know your Lp(a) levels and what medications are on the horizon.
Updates from the Family Heart Foundation: Advances in Homozygous FH
February 27, 2023
Family Heart Foundation Chief Medical Officer Dr. Mary McGowan and Board Member Allison Jamison will join our HoFH community to discuss recent research and developments, including findings from the Family Heart CASCADE FH Registry.
Living with High Lipoprotein(a): Managing Risk and Stress
February 15, 2023
When treatment options are limited, how do you manage stress related to your high Lp(a)? Join our community and Chief Medical Officer, Dr. Mary McGowan to talk about how balance risk and stress.
Living with High LDL Cholesterol: The Journey to the Safe Zone
February 13, 2023
Our community will gather with special guest and Chief Medical Officer, Dr. Mary McGowan to discuss how individuals with FH and HoFH get their LDL to the “safe zone” and keep it there.
Getting to Your LDL-C Goal & Staying There: Why it is So Important?
September 6, 2022
In this Family Heart Foundation webinar, Chief Medical Officer, Dr. Mary McGowan, will explain the role of very high LDL Cholesterol in the development of heart disease and why it is important to lower LDL to recommended "goal" levels and keep it there. She will describe what you can do to achieve LDL goals and share tips on how to make the most of your doctor's appointment to help you get out of the danger zone and prevent heart disease.
Lipoprotein(a) Today and Tomorrow
March 28, 2022
Dr. Calvin Yeang of the University of California - San Diego and member of the Family Heart Lipoprotein(a) Scientific Advisory Board will help you understand how elevated Lipoprotein(a) can increase the risk for heart disease, stroke and aortic valve disease. You will leave this webinar with a greater understanding of the genetics of elevated Lipoprotein(a) and the importance of family screening. If you have an elevated Lipoprotein(a), this webinar will provide you with ways to reduce your risk of heart attacks and strokes now and will discuss potential therapies on the horizon.
Finding and Treating Homozygous FH
February 28, 2022
This Rare Disease Day, join Dr. Linda Hemphill from Massachusetts General Hospital and Allison Jamison, Family Heart Foundation Board Member, to discuss the current state of diagnosis and care for HoFH. Learn more about the urgent need to implement childhood screening guidelines, and to recognize HoFH in adults, so that HoFH can be uncovered before significant disease has taken hold. Leave this conversation understanding all the treatment options for this rare and serious metabolic disorder.
Statin Intolerances: Fact, Fiction, or Somewhere in Between
January 18, 2022
Do you have patients with Statin Intolerance? Learn more about how this challenge impacts getting our patients to their cholesterol goal and what can be done to address this problem. Dr. Paul Thompson, cardiologist and lipidologist and Emeritus Chief of Cardiology at Hartford Hospital, will speak on statin intolerance. This webinar is jointly hosted by the New England Lipid Club and the Family Heart Foundation. Dr. Thompson has authored over 500 articles on such topics as the effects of statins on muscle function; the effects of Coenzyme Q10 on statin myalgia; and genetic factors increasing the risk of statin myalgia. Dr. Thompson is the Co-Editor of the book Statin Associated Muscle Symptoms.
Recording coming soon!
COVID-19 – Year 3: How to Live with the Omnicron Variant
January 19, 2022
Covid and the Omicron variant are surging in the US and around the world. What do you need to know about, vaccines, Covid treatments, and the risk of Covid for people with or at risk for cardiovascular disease. Family Heart Foundation's Chief Medical Officer, Dr. Mary McGowan, will present an update and answer questions.
Understanding Lipoprotein(a): What does the AHA Statement Tell Us?
December 14, 2021
The American Heart Association recently published a Scientific Statement on Lipoprotein(a). Learn from lead author, Dr. Gissette Reyes-Soffer what this important statement has to say about the role of Lipoprotein(a) in heart disease and stroke and what you need to know as a patient or as a clinician.
FH Community Forum: Why is FH Underdiagnosed or Undertreated?
December 11, 2021
Our 2021 FH Community Forum talks about the barriers to diagnosis and care our panelists faced, how they overcame them, and what they hope for the future. Hosted by Dr. Christie Ballantyne, FH Community Forum panelists share their experiences, how they were diagnosed, and what treatments worked for them and their families.
Lp(a) Community Forum: Why Test Lipoprotein(a)?
December 4, 2021
Our 2021 Lp(a) Community Forum talks about the barriers to diagnosis and care our panelists faced, how they overcame them, and what they hope for the future. Hosted by Dr. Abha Khandelwal, patients share their experiences and frustrations with getting Lipoprotein(a) testing, knowing where to go and what to do next with the results, and the impact of high Lp(a) on their health.
The Role of Lipoprotein Apheresis in FH, Lp(a), and ACSVD Management
November 17, 2021
Have you or someone you care about been diagnosed with high cholesterol? What does that mean and what can you do about it? Watch the Cholesterol Basics webinar and hear from Dr. Joshua W. Knowles, from Stanford University Medical Center, and the Family Heart Foundation. Find out what cholesterol actually is and the role it plays in our bodies and our heart health.
Cholesterol Basics
September 1, 2021
Have you or someone you care about been diagnosed with high cholesterol? What does that mean and what can you do about it? Watch the Cholesterol Basics webinar and hear from Dr. Joshua W. Knowles, from Stanford University Medical Center, and the Family Heart Foundation. Find out what cholesterol actually is and the role it plays in our bodies and our heart health.
Lp(a) Basics
July 21, 2021
Have you or someone you care about been diagnosed with high Lipoprotein(a), also known as Lp(a)? What does that mean? What can you do about it? Register for Lp(a) Basics and hear from Dr. Abha Khandelwal, Stanford University Medical Center, and the Family Heart Foundation. Find out what Lp(a) actually is, why it's an important genetic risk factor for cardiovascular disease, and the role it plays in heart health.
Cholesterol, Inflammation and Heart Disease Webinar
June 2, 2021
Want to understand the role of cholesterol, inflammation, oxidized lipids, and immune response in the development of heart disease and stroke? Find out what really causes atherosclerosis (deposits of plaque in the arteries) and what you can do about it. Hear from Dr. Mary McGowan, chief medical officer for the Family Heart Foundation, and have the opportunity to ask your questions about cholesterol and heart disease.
Lp(a) 101 Webinar
March 24, 2021
Lipoprotein(a), or Lp(a), is an important genetic risk factor for heart attacks and strokes. Join us for our Lp(a) 101 webinar.Dr Mary McGowan, Chief Medical Officer of the Family Heart Foundation, will present the latest guidance and answer your questions including: – What is Lipoprotein(a)? – What does high Lp(a) means for heart disease risk, including heart attacks and strokes? – How is Lp(a) inherited? – How can you get tested? – What should you do if you or your family member has high Lp(a).
Living with Homozygous Familial Hypercholesterolemia Today
February 25, 2021
Managing high cholesterol, possible heart disease and juggling life are just a few of the challenges people face living with Homozygous Familial Hypercholesterolemia (HoFH) the most severe form of familial hypercholesterolemia. Yet, today there is more hope than ever with new treatments and scientific advances for both adults and children with HoFH. Join Dr. P. Barton Duell, Director of Lipid-Atherosclerosis Laboratory and Sterols Analysis Laboratory and LDL Apheresis Unit at Oregon Health and Science University, and Dr. Lisa Hudgins, Associate Professor of Pediatrics in Medicine at the Rogosin Institute/Weill Cornell Medical College, as they share the latest research and new treatments on the horizon.
The (Post-COVID) Future of Heart Disease Prevention
February 18, 2021
What have we learned about COVID-19 and heart disease? What are your risks if you have familial hypercholesterolemia, elevated Lipoprotein(a) or other heart disease risk factors? What about the COVID-19 vaccine? Join Dr Larry Sperling, Katz Professor in Preventive Cardiology and Founder of the Emory Center for Heart Disease Prevention, and Katherine Wilemon, Founder and CEO of the Family Heart Foundation to answer your questions and give you the latest science and guidance for COVID-19.
Cholesterol Control: How can diet and medication help?
December 21, 2020
In our latest webinar, Cholesterol Control: How can diet and medication help?, registered dietician Mary Card provides diet and nutrition tips and answers top questions. In addition, Dr. Mary McGowan explains how diet fits into an overall management plan for familial hypercholesterolemia and high cholesterol.
2020 FH Community Forum
December 12, 2020
On December 12, 2020, we went live for our first virtual FH Community Forum. In a moderated discussion led by Professor Amy Curry Sturm, Director of Genomic Counseling and Screening at Geisinger, individuals with FH and Homozygous FH shared their diverse perspectives to help us all understand what it's like when FH runs in the family.
2020 FH Community Forum
April 15, 2020
Join us for an FH Community Webinar with updates on what you need to know about COVID-19, FH, Lp(a), and Cardiac Risks. Hear from our Chief Medical Officer, Dr. Mary McGowan, and share your own questions and concerns.
Virtual FH Community Gathering – COVID-19 and FH: What you need to know
March 25, 2020
Hosted by the Family Heart Foundation, this webinar features an FH Community Discussion with Dr. Mary McGowan, Chief Medical Officer, and Katherine Wilemon, Founder and CEO. Hear from the Family Heart Foundation and the FH Community as they share their questions, concerns, and coping strategies with us and others living with FH.
HoFH Treatments
February 25, 2020
Dr. Mary McGowan, Chief Medical Officer of the Family Heart Foundation, will provide an overview of hypercholesterolemia (FH) and homozygous FH (HoFH). She will also discuss new treatments on the horizon.
How you can contribute to Familial Hypercholesterolemia Research
December 4, 2018
This webinar will help you understand what a patient registry is and the impact this research can have. Joining us will be the Cystic Fibrosis (CF) Foundation to share their experience with their registry and how it has changed the landscape for patients affected by CF. We will also share what the Family Heart Foundation is learning from the national CASCADE FH® Registry and what you can do to contribute to the scientific understanding and improvement in care for Familial Hypercholesterolemia.
Pregnancy and FH
November 7, 2017
Women with FH face many treatment decisions and care options when planning for pregnancy. Hear from our expert, Dr. Gina Lundberg, Clinical Director of the Emory Women's Heart Center, on considerations surrounding pregnancy, including treatment options, cholesterol questions, and pre- and post-natal care.
Insurance 101
June 29, 2017
The Family Heart Foundation® and the Patient Advocate Foundation have teamed up to help ensure you know what to do to access the care you need for Familial Hypercholesterolemia. This webinar will help you understand your insurance plan choices, where you might be able to save, how different FH treatments are covered by insurance, and what to do if you are denied approval for FH treatment by your insurance plan.
As reference, click for our Navigating Insurance Guide.
Living with Homozygous Familial Hypercholesterolemia
February 22, 2017
What is it like living with a rare disease? Join four individuals as they share their perspectives on living with HoFH – the rare and most severe form of familial hypercholesterolemia.
Living with Homozygous Familial Hypercholesterolemia
February 6, 2017
Join a father and daughter who are affected by inherited heart disease as they talk with Dr. Underberg about how familial hypercholesterolemia (FH) has impacted their family over generations.
FH Treatments: What's in Development?
December 1, 2016
This is Part 2 of a two part webinar on FH Treatments. There are more treatments in the pipeline for Familial Hypercholesterolemia. Dr. Dan Rader will help us understand the drugs that are currently in clinical trials and how they work.
Understanding FH Treatments
December 1, 2016
This is Part 1 of a two part webinar on FH Treatments. There are several treatments available to help individuals with FH manage their LDL cholesterol with the goal to lower the risk of heart disease. FH expert, Dr. Dan Rader, will help us understand these treatment options, how they work, who they are FDA approved for, and what kind of results we might expect.
Homozygous Familial Hypercholesterolemia
August 24, 2016
Learn about current developments in the understanding of HoFH and what is on the horizon for HoFH treatment from world renowned FH expert and the Chief Scientific Advisor to the Family Heart Foundation, Dr. Dan Rader.
Homozygous Familial Hypercholesterolemia
February 23, 2016
Is your family affected by FH? Join our FH & Heart Disease webinar with Dr. Michael Shapiro to learn how familial hypercholesterolemia can lead to early heart disease and heart attacks.
The Genetics of FH
December 9, 2014
Amy Sturm, MS, LGC, presents "The Genetics of FH" for Family Heart Foundation Advocates for Awareness and Members. Don't miss this exciting opportunity to learn more about FH and ask questions about how FH can affect your family.
