You may have familial hypercholesterolemia (FH)
This information is for individuals who have been notified that they may have the inherited condition called Familial Hypercholesterolemia (FH) as a result of being screened using a tool called FIND FH®. FIND FH is a partnership between Penn Medicine and the Family Heart Foundation™. The goal of FIND FH is to identify people at high risk and treat them to prevent early heart disease.
FH is genetic and common. FH causes high LDL Cholesterol (LDL-C) ("bad" cholesterol) and can increase the risk of an early heart attack. FH is under-diagnosed, so most people with FH (7 out of 10) are not aware of their risk.
Your Health System and the Family Heart Foundation are working together to identify people who are at high risk of having FH. A special computer tool (the FIND-FH program) was used to screen your medical record and determine your risk.
You appear to be at high risk (>70% chance) of having FH. It is important that you get evaluated by an expert, because people with FH who do not get treatment, are more likely to have heart attacks at a younger age and have more difficulties treating high LDL-C due to it being a genetic condition.
A single expert medical consultation is highly effective in allowing you to find out if you do or don’t have FH. Sometimes this can be done as a remote tele-consultation (video or phone). You may need to get a blood test to measure your cholesterol.
If you end up having FH, we are confident you can manage it! While it can be complicated at times, there are many resources for helping you manage your cholesterol to a safe level and reduce your risk of heart disease. The Family Heart Foundation is a great place to start with getting information to understand FH and get support emotionally, to find expert physicians who know how to treat FH anywhere in the country and guidance on managing insurance and costs of medications.
Yes, if you have FH, your relatives are at risk of having it too (siblings, parents, and children). But the first step is to get an evaluation and see if you have FH. Your physician can then give you guidance on how to screen other family members at risk.
Family Heart Foundation Website
Visit the Family Heart Foundation website to discover what the Foundation is doing to raise awareness of familial hypercholesterolemia (FH) and high Lipoprotein(a), or Lp(a), and saves lives. Here, you will also be able to learn about these conditions, read FH and high Lp(a) family stories, watch webinars about treatment options and genetics, and find out what you can do to help!
Newsletters and Updates
Sign up with the Family Heart Foundation to receive monthly news, education and support!
Clinical Trial Alerts
Sign up for routine emails to learn about ongoing clinical trial opportunities or search on your own.
Family Heart Foundation Facebook Page
Like this public Facebook page to keep up to date with news about the latest developments in FH and FH Foundation activities.
Family Heart Foundation Facebook Discussion Group
Join the discussion and connect with others who have FH or high Lp(a) in these private Facebook discussion groups.
We want to hear from you!
Your story is our story. Email us to share your story with others, ask for help, share an idea, or find out how you can help raise awareness of FH in your community: info@theFHfoundation.org